Phew! So yesterday I got back from an exhausting two-day tour of the UK and Ireland’s cancer hospitals.
It started with a 5am rise on Tuesday for my flight to Dublin with Mum, to meet the oncologist who’ll be looking after my radiotherapy treatment. By 9am I had trekked through two airports and endured a cramped Ryanair flight with a screaming, kicking child in the seat behind me, people coughing all around me and the constant intrusive din of Ryanair’s overhead advertising of refreshing J20, a selection of hot drinks and snacks and a very special, exclusive 2-for-1 scratch card deal. Let’s just say I understand why air travel is not recommend during chemotherapy treatment. It’s exhausting.
First up, I headed to work to see my colleagues and pick up my post before going to my hospital appointment. At 11:30, after greeting half of my department with a hug and being regaled with tales of how half of them had just got over the 24-hour vomiting bug that’s sweeping Britain and Ireland, I called my doctor for the results of Monday’s blood test and found out I was neutropenic again. My white blood cells and neutrophils had completely reversed their earlier gain and were so low that I had virtually no infection-fighting abilities and shouldn’t really be around anyone at all, let alone sitting on Ryanair flights and hugging germ-ridden workmates (no offense!). However, I was already in Dublin by that point and any damage had already been done, so the hospital said they’d test me when I got back to Manchester.
Next up, my appointment at St. Luke’s, a specialist cancer hospital in the leafy Dublin suburb of Rathgar. Now, for those of you who’ve been reading this blog since the beginning, you’ll know I was diagnosed at St. Vincent’s, which is a large hospital in Dublin, and I was expecting something similar. But as soon as we pulled up in the taxi outside St. Luke’s, I could see it was different. You can’t really tell from the photo to the left but it was more like a quaint old people’s home or an American chapel than a hospital – just one storey high and with a very friendly, intimate vibe. I loved it immediately. (Well, as much as it’s possible to love a hospital where you’re about to be blasted to pieces with radiation).
I walked up to reception and said “Hi, I’ve got an appointment with Dr McVey” and the response from the reception desk was a very hearty, smiley, “Ah, you must be Laura!”
Honestly, I have never felt so welcome (even at a hotel, never mind at a hospital!) It turns out I had been in touch with the friendly woman on reception via email, and when she saw me with my little wheelie suitcase she realised I was from out of town and put two and two together that I must be the young British girl coming over for radiotherapy. But still! What lovely people.
Unfortunately, after all that, it turns out I won’t be able to have my radiotherapy at St. Luke’s because they couldn’t fit me in on the public system so I have to go privately at St. Vincent’s instead, but that’s fine because it’s closer to work and my flat. I’ll write a separate post about my radiotherapy treatment plan because it’s too much information for this post, but basically I should start on 2nd Jan and finish at the end of February, with 33 radio sessions.
Flying Back to Manchester
On the flight home, with Aer Lingus this time, I was momentarily delighted when I saw that we were sitting in the emergency exit seats, i.e. plenty of leg room and as much space as possible away from my fellow passengers with their various vomiting bugs and winter flu. The delight was soon snatched away from me, though, when your lady from Aer Lingus looked at me, gestured towards the window I was sitting next to and said “You’re guarding the emergency exit there, are you willing and able to initiate an evacuation in an emergency?” (You see, I had taken off my wig by this point and was wearing a snazzy purple beanie and I obviously screamed “cancer patient/invalid” to her.)
I paused for a moment, recalling the opening scenes from series 1 of LOST. Was I really strong enough, after six rounds of chemo and one exhausting day of travel, to lift a 15kg aeroplane door off its hinges in a crash and lead my fellow passengers down the inflatable slide into the sea, making sure they all took off their heels so as not to puncture it?
“Yes,” I finally said. I was too exhausted to move and I really didn’t care that much about my fellow passengers anyway. (Apart from Mum, and I’d help her down the inflatable slide first anyway). Plus the evacuation procedure looked simple enough.
“Please ensure all electronic devices and mobile phones are switched off,” the cabin attendant said, eventually, preparing for take off.
“Oh NO!” Mum exclaimed from the seat next to me. She had left her mobile phone on, and the cabin lady had insisted we put our bags up in the overhead cabins so as not to block the emergency exit, and now we were all firmly belted in and ready for take-off. “What should I do?” she said, looking at me for answers.
I was in two minds. I knew Mum’s phone was unlikely to cause a crash during our 40-minute flight to Manchester, but I wanted to avoid any increased risk that I would have to get off my poor chemo-sapped arse and shuffle 100-odd passengers out of that emergency exit, so eventually we asked the cabin lady to get Mum’s bag down so she could switch her phone off.
The plane did not crash. We made it safely to Manchester. Then I got a paper cut from one of the items of my mail I’d picked up from the office. Will it ever end?!
Back to the Christie
Luckily, we had the good sense to stay overnight in Manchester on Tuesday, otherwise I don’t think I’d have even had enough strength to get myself back there on Wednesday (purely due to tiredness and still fighting this infection). I was in for my three-week post-chemo check-up, which truly marks the end of chemotherapy – hooray!
Because I was neutropenic on Monday, I went in for another blood test on Wednesday. Unfortunately, I was dehydrated from our overnight stay in a stuffy hotel room (I know people commit suicide sometimes but I really wish hotel rooms had openable windows…) and it took three painful attempts before the nurses could get blood from me. Yuck! Seriously, I must have had more than 100 needle injections so far in 2012.
Then followed a tense wait for my blood count results. If my white blood cells and neutrophils went down from Monday, I would have to be admitted as an inpatient and be hooked up to a drip again for a few days in hospital – possibly spending Christmas Day at the Christie Clinic. But if they went up, I would be allowed to go home. So you can only imagine how relieved I was when the doctor told me they’d gone up. Not exactly by much, but honestly, I couldn’t care less as long as I was able to go home.
Now please let me not have picked up any vomiting bugs in the past two days! (Not that it matters anyway, seeing as the world is going to end tomorrow…)
6 thoughts on “Dublin in a Day, Back to Neutropenia and the End of the World”
I’m happy to hear that you get to be home for Christmas. Take it easy. Eat healthy. Take naps. Build up your skin up until the day before radiation by using a rich lotion. Everyone’s experience is different. My radiation was pelvic and I’m much older than you are, but I did pretty well in part because I babied my skin before treatments started. Once I started radiation I could only use certain very gentle soaps and creams. It’s always good advice to take good care of yourself!
Thanks, that’s really helpful advice! I am planning on getting lots of aloe vera to use as well. I’ve got some great moisturiser (Cetaphil) so hopefully that’ll do me some good too. Wishing you a wonderful Christmas! Laura xx
Laura, bonita! Que bom que vc vai passar o natal em casa! Que papai noel traga muitos globulos brancos de presente, entre outras coisas bacanas! Happy holidays!
haha obrigada, espero que sim! Te desejo um natal muito feliz e um otimo ano novo! Espero te rever em 2013! Beijos
I would trust you to open the emergency door and lead me to safety chick, your superwomen, actually with the sports personality of the year going to Bradley Wiggins I would like to give the gravest person award to my wonderful friend Laura Pricey, you are such an uplifting person, you are a remarkable women that will go from strengh to strengh in life and will achive and have achived amazing thing, you are my star, I have really enjoyed reading your blog and will look forward to your next blog in 2013, have a fab christmas with your family and I hope to catch up again very soon with you my darling.
Merry Christmas Pricey 🙂
All my love Liz ( Gledders ) xxxxxxxxxxxx
Aw thank you Gledders, you are wonderful. Wishing you an amazingly happy Christmas too, I’m sure it will be! Your first Christmas with Mark as husband and wife! Loads of love to you and hopefully catch up soon! xxxx