Archives for posts with tag: gene test

Yes, I really did wear my birthday bunny onesie to the hospital yesterday. It had to be done, given Monday’s good news re: the BRCA gene result and then the fact that it was my final chemo session. And guess what? Not a single person commented! A few people looked me up and down with amused faces, but not even the oncologist batted an eyelid when I turned around to leave his office, revealing my white bunny tail! (Pippa Middleton, eat your heart out). Well, these people have clearly seen it all.

(That’s mother in the background beavering away relentlessly at her work – she never ceases.)

The day in hospital took a little longer than usual, but the chemo itself flew by. Nurse Alison was one of the best I’ve had yet and she managed to get the needle and cannula into my hand with the minimum of fuss, effort and pain, much to my relief. The ice torture wasn’t even as bad this time – I swear the gloves were warmer, or maybe I’m just getting used to it. There was a period of about 15 minutes with the second pair of fresh ice gloves when my hand was completely numb and I thought it was going to drop off, but the fact that I knew it was my final chemo made it all easier to bear.

The good news is the oncologist agreed with the geneticist that I don’t need to have the mastectomy operation. The combination of surgery, chemotherapy, radiotherapy and five years of Tamoxifen on my left breast is the equivalent of having a mastectomy, he said. Of course, there is much more of a risk of getting breast cancer on my right-hand side at some point, but if this happened, I could have the same treatment of surgery, chemo and radio again (God forbid this never, ever happens). And if I get a recurrence on my left side, I’d have to have a mastectomy then. He said the double mastectomy and reconstruction at this stage would be such a huge and fairly risky operation that my situation doesn’t merit taking the risk, so I shall now cast all doubts from my mind and concentrate on getting back to my life – a very, very happy day!

My blood count yesterday, even after two days of steroids to boost it, was still almost too low to have chemo, and the oncologist had decided that my infection and high temperature a couple of weeks ago were the effects of the chemo, so he has given me more steroids to take for the next few days, plus some other drugs to offset the side effects of the steroids, so this is the grand total of what I’m on at the moment:

– The Taxotere chemo itself

– Dexamethasone steroids (I’m in hot-flush heaven right now…)

– Once-a-day injection of Filgrastim for 10 days to boost my bone marrow/immune system

– Lansoprazole to offset steroid side effects

– Senokot to ward off the constipation

– A healthy cocktail of Co-Enzyme Q-10 and multivitamins

– Aspirins in a few days’ time when the pain sets in

– Tamoxifen starting in three weeks for five years!

Uff! That’s definitely the most drugs I’ve ever taken, I’d say!

So, the next steps… well, it’s not over yet. I have to go back to see the oncologist in 3 weeks for a check up. No doubt my blood count will be very low by then as it’s never recovered properly and I won’t be taking the steroids any more, but fingers crossed there’ll be no infections this time. Then I start taking Tamoxifen, the drug to reduce my oestrogen levels for five years, and in 3 weeks I also go to Dublin to meet the radiotherapy team.

Then, fingers crossed, radiotherapy in January and February, then back to see the surgeon in March, back to see the oncologist in June and so on and so forth returning to the hospital for the rest of my life!

I confess I had a bit of a sugar binge last night because I really felt the need for sugar and thought, if you can’t have some Haagen Dazs ice cream, ginger ale and prawn cocktail crisps on your final day of chemo, when can you have some Haagen Dazs ice cream, ginger ale and prawn cocktail crisps?! Plus, the oncologist is absolutely adamant that what I eat has nothing to do with my cancer so if it were left to him, I could just continue as normal. But I’ll give all those nutritionists the benefit of the doubt and continue with my healthy eating from now on…

Finally, thanks to Kimm and Howard, who sent me these gorgeous flowers about 20 minutes after I got my gene test result on Monday. Beautiful!

Now it’s off to rest for a few days… This bunny is DONE with chemo!

After an agonising 8-week wait, I finally got the results of the gene test when I was half-asleep this morning. Amazingly, I tested negative and got the all-clear for the BRCA1 and BRCA2 gene faults. This is great news not only for me but also for my family, as we can just about assume none of us inherited the gene mutation (and perhaps Granny Hetty never had it after all). PHEW! This means several things (I feel a list coming on…):

1) I can keep my original boobies!

2) I won’t have to have a double mastectomy and try to make new boobs out of my back muscle/stomach flab (so I’ll stop eating all the pies now).

3) I will be able to proceed with radiotherapy in Dublin in January, dates pending – watch out Dublin & FB, here I come!

4) I should be able to have baby Priceys some day without having to worry about passing on nasty harmful genes to them.

Hooray! Now that really is a weight off my mind.

There is still a decent chance I could get breast cancer in my untreated breast at some point in my lifetime (30% over the next 60 years, compared to about 5% for a woman who has never had breast cancer), but apparently this is not enough to merit a preventative mastectomy. I may be able to have further tests in 5-6 years to see if I inherited a different condition that caused my breast cancer, and there’s a chance I could look at having a mastectomy then, but for now the decision is that the boobies are staying put! My ovarian cancer risk is also about as low as that of any person, as far as I understand. So, happy news all round.

Fortunately, I had some fabulous girlfriends to stay for the weekend, which took my mind off waiting for the phone to ring with my results. As you can see, we had a great time frolicking in the Yorkshire countryside in our wellies, and later trying on all my wigs. My legs are now sore from all the up-hill walking in wellies, and I’m feeling drugged up from the steroids and ready for a good sleep.

(Here we are pictured hanging from a tree that must’ve fallen in the past few days’ incredibly strong wind and rain!)

Wig Party!

(Both photos courtesy of Miss Sophie Austin!)

The No-Sugar Diet

In other news, I just wanted to clarify to you all that I am staying off sugar for good, as I don’t think I made it clear in my previous blogs. The reason for giving up sugar in the first place was that there are very strong links between sugar and cancer, and drastically reducing my refined sugar intake is one of the ways I can try and prevent my cancer from recurring. I am looking forward to meeting the nutritionist in two weeks to find out more, but it seems eating refined sugar in things like chocolate and baked goods can cause my cancer cells to grow and thrive, so the best thing I can do is cut it out as much as possible.

As my weekend visitors know, I may have lapsed slightly with a certain sticky toffee and ginger pudding and some delicious chocolates, brownie and cookies, but I am now back on the no-sugar diet. As with all temptations in life, it’s pretty tough to cut it out 100%, so the plan is just to have tiny amounts of sweet goodies occasionally, but cut them out on the whole. So if you’re stopping through the Shepley area and fancy popping in to help me through my backlog of sweeties, please do stop by!

It’s the final chemo tomorrow! I think I will be practically dancing around with joy in a 10 days’ time when I’m through the worst of it!

HOORAY FOR BOOBIES AROUND THE WORLD! GO CHECK YOURS!

%d bloggers like this: