Archives for posts with tag: white blood cells

Oh dear. I’ve had a very mild, tickly cough for about a month and yesterday it escalated into a full-blown, nasty choking, phlegmy cough. During the night I developed a painful sore throat and woke up this morning having largely lost my voice, so I am now on the antibiotics. So much for having a super-sonic immune system with 39.7-level white blood cells! Pah!

So, the nutritional therapist. I had a 1 1/2-hour consultation on Friday with Liz Butler, founder of Body Soul Nutrition, with a view to getting some advice on what I should be doing to keep my cancer away, and finding out whether any of my eating or lifestyle habits could have developed a better environment for the cancer to grow in the first place. One of the things she said was that many people have their cancer treatment and then go back to living their lives exactly as they did before – continuing to eat the same things, maintaining the same stress levels and doing the same amount of exercise, thus preserving the same body conditions in which the cancer initially thrived. It’s vital, according to Liz, to make drastic changes, both emotionally and nutritionally, to keep the cancer cells from growing again.

Her main recommendations were that I cut out dairy altogether and avoid sugar as much as possible. She also gave me some nutritional plans and talked to me about how each meal should be ideally composed, i.e. 50% vegetables and fruit on each plate, 20% starchy carbs (but only whole grains – no white rice, white pasta, white bread etc), 20% protein (eggs are allowed – phew!) and 10% fats (including nuts, pulses and butter, which is the only dairy allowed).

All of the above seems largely doable, apart from the giving up of dairy products and sugar, which is difficult for me to envision for the rest of my life. Two weeks, as I proved before, is easy peasy, but a life with no pizza (cheese), tea and coffee (milk), cheese and biscuits, cake, chocolate and many other tasty things is hard for me to get my head around. On the positive side, she did say I’m allowed red meat (once or twice a week, max), as long as it’s the best type of meat I can get my hands on – i.e. organic, free range etc (because the lower quality the meat, poultry or fish, the more likely it is to have been injected with antibiotics, hormones, etc).

One thing to stress is that the nutritional therapist didn’t say I have to give up all these things entirely – she said it’s fine to have a little of what I fancy, when I fancy, i.e. a couple of squares of dark chocolate every couple of days or a slice of cake or a dessert once a week, which is also fine. But I will struggle more with dairy because I eat a lot of it.

I decided for my last chemo I would be good to myself and let myself eat what I wanted, because often you feel so miserable and your tastes change so much, I didn’t want to punish myself like last time. So I’ve been eating something sweet most days, though not going overboard. And Christmas is coming up, so I’m not going to punish myself then either. But it’s important during radiotherapy to eat well to minimise the side effects, so I will definitely start being a little more strict in January.

I plan to take Liz’s advice to the extent that I can manage, cutting out dairy and sugar as much as possible but essentially allowing myself what I want in moderation. I am still very much aware that the oncologists don’t recommend any specific dietary changes and they certainly don’t recommend giving up sugar and dairy, and there is no proof or concrete evidence that doing so would guarantee my cancer never recurs, but at the same time changing what I eat to some extent will at least allow me to have a little more control over the situation. Nevertheless, I thought I might as well start as I mean to go on…

I started off well. Saturday morning, I had my first ever black coffee, and I quite enjoyed it. (I forgot to mention she told me to give up caffeine, but I may have to do things gradually!) Then I had a ginger steeper (fresh ginger in boiled water) at Leon. For lunch at Giraffe, I ordered a fresh fruit smoothie and a brown-rice sushi salad consisting of spinach, smoked salmon, mango, avocado and various seeds. But because I didn’t quite have the 50% veg/20% carbs ratio quite right, I ordered a separate side helping of sauteed veg (green beans, peppers and the likes – delish). Which brings me to Nutritional Problem #1: eating better is way more expensive. The better quality and the more organic the meat or the veg, the more the price increases. And the more veg portions you order to try and get the right balance, the more you end up paying. And Nutritional Problem #2: The better you want to nourish yourself, the more you have to plan what you eat, where you eat, when you eat, etc.

And then it all went down hill. As mentioned in Tuesday’s post, Saturday night I went to Bubbledogs and ate two hotdogs. I am not convinced the pork sausage was the most organic meat in the land (largely because I do not know its origin) and I can take an educated guess that barbecue sauce and ketchup both have a fair amount of added sugar. That said, at least I didn’t have a pudding, and the jalapeños on the Mexican dog would have been good for me. But I did have a glass of champagne.

Sunday, it went further down hill, with a bacon sandwich on white, a cheese toastie and sausage, chips and veg for dinner. And Monday, a decent lunch of Eggs Florentine (bit of spinach, decent amount of protein) and a handful of Niki’s fries, then fish and chips on the train home (free first-class food, I could hardly refuse, could I?) I suspect the quality of the fish on East Coast Trains may not be the best in the world, which brings me to Nutritional Problem #3: It’s particularly hard to change your nutritional habits when you’re away from home. But, like I said, I’m not being strict on myself at the moment as a) I’m still under the wicked spell of the last chemo and within the three-week cycle, b) I’m sick and c) it’s the season to be jolly, tra la la la la la la la la.

Thank you all, though, for adhering to my request not to send me any more junk food. Alice very kindly oven-roasted me some assorted nuts in fennel and honey and they are amazing – I’ve been munching my way through them as only a gannet would. I since found out that honey is on the no-no list of sugary foods (Sorry, Mr Curado, I misinformed you), but I’m happily munching through them anyway (see points a, b and c). Thanks also to Beth for the lovely tin of personalised soup, as pictured at the top of the page (don’t ask why “Bobr”).

So, that’s (the very much abridged version of) what the nutritional therapist said. I still have a lot of reading and researching to do, and I confess I am slightly skeptical that following all this advice will keep the cancer away for good, because I have always eaten so healthily and it’s most likely my cancer was caused by a gene fault (just not the one I tested negative for). However, I have to do something to take this into my own hands, and improving my diet seems to be a good place to start (she says, while slurping through a cream-heavy tin of chicken soup…)

Friday turned out to be rather stressful. Having had a higher-than-normal temperature for almost a week, I had been to the doctors for a full blood count test, to check if everything was in order before I headed to London for my nutritionist appointment (of which, more in a later post). Of course, when I called for my results, the receptionist told me to call back at 11:30am, which was precisely the time my train set off for London.

When I was admitted to hospital with a high temperature a few weeks ago, I had a condition called neutropenia, where I had an abnormally low number of white blood cells called neutrophils. While I was neutropenic, anyone who entered my hospital bedroom had to wear rubber aprons and gloves so as not to spread their germs, because an infection can quickly become life-threatening for chemotherapy patients. My neutrophil and white blood cell levels at the time were something like 0.5 (i.e. extremely low).

Naturally, I was concerned on Friday that my GP would call back and tell me I was neutropenic again, and I’d have to abort my lovely first-class train journey with my mother and pay £100+ to jump on the next train back home, forfeiting my nutritionist appointment and weekend plans. So imagine my surprise when the good doctor called back and told me my white blood cells and neutrophils were at 39.7 and 34.9 respectively!

These abnormally high levels, he said, indicated that I must have an active infection but that my immune system (for once!) was fighting it extremely well, producing more white blood cells to kill the nasties. Of course, the daily injections I’ve been having are to boost my immune system and the blood test was taken on day eight of the daily injections, so there was every chance my counts were artificially high because of those shots.

Slightly alarmed, I called the hospital to ask them what to do. Did I need to get the next train to the hospital in Manchester because I had an infection? Or was I fine to continue with my plans because my body was fighting it effectively? I felt absolutely fine in myself, apart from the slightly worrying temperature, nose bleeds, hot flushes, tiredness and other usual chemo side effects.

I managed to get all the way to London, do my final self-injection in the loo of a Vauxhall Pret a Manger café and have my 1.5-hour nutritionist appointment before I got a definitive response from the hospital: I was absolutely fine. The abnormally high white blood count was a natural response to the daily shots and my immune system was behaving exactly as it ought to. I still to this day don’t know whether I had an infection or not, but I have at least stopped worrying about it.

I didn’t manage to perform a jig after my last self-injection because I was still too stressed at that point. My left eye has also been twitching sporadically for the past few days, something that happens when I am stressed. A quick straw poll revealed that a twitchy eye is a Price-family-wide problem. (Good to know it’s not just a side effect of the leftover eyelash glue.) I went to a doctor about it many years ago and was told it was “psychological”. I had saved up four different problems for that particular doctors visit as I didn’t think it sufficient to take two hours off work to ask about a twitchy eye alone, and the very unhelpful GP kindly declared every single one of my ailments as “psychological”. So that told me!

I do feel bad going to the doctor and being told there’s nothing wrong with me. I am a constant guilt sufferer. They tell you to report everything from high temperatures to sore veins to stomach pains, but then you do so and find out there’s nothing wrong and you start feeling like a hypochondriac time-waster. But, as with the lump in my breast that I decided to seek a second opinion on, it’s always better to be safe than sorry.

I finally got back from London late last night after spending Monday catching up with different friends, among whom a 9-months-and-one-week pregnant lady and a friend hobbling around on crutches after breaking her toes surfing. When I went to bed at 8pm on Sunday night and slept until 9am Monday morning because I was so shattered, I never imagined I’d be the fittest and most able-bodied of my friends come Monday afternoon!

The good news is the hot flushes seem to have finally stopped, which means I can rule out the menopause and blame it all on the steroids. I may have had a wee glass of champagne with my hotdog on Saturday night to celebrate (as you do).

%d bloggers like this: